I've been dragging my feet about sharing this part of my story but Every time I start to blog this is the story I want to tell, I need to tell. So buckle-up for this wild ride.
At the time of my sentencing I had been taking my medications for nearly six months. Most of my medications were to manage my mental illnesses, including Lithium for bipolar. And while I did not prepare for much else, I did gather my medications to take with me just in case because I knew how important it was to be without my lithium. * A quick note here about bipolar and lithium. Lithium is a medication that has a very small window between effective treatment and overdose. When using the drug for treatment of bipolar you need to have blood tests done to check lithium levels every 6-8 weeks. Also stopping treatment with lithium all at once can trigger an episode of depression or mania* With all this in mind, I was prepared with lithium in hand. I was not allowed to take my medications with me but my husband was informed by my attorney that he could drop my medications off at the jail later that day, which he did.
Throughout processing and while in Crisis for the first 24 hours, I asked about my medications, specifically my lithium. I was told I would need to talk to this person or that person and that I could do that in a minute. That never happened that first night. So on the second day, when I finally spoke to someone in medical, I was told that my medicine was delivered and would start that night. What I wasn't told was that all of my medications would be crushed and that some of my meds were not approved for the jail therefore I could not have them while there. Not even if they were for mental illness. Ugh! Who decides these things! I tried to stay calm and just hoped my lithium would be on that cart.
The next evening when the medicine cart came, staffed by a CNA, some of my medication was on the cart! Yay! And my lithium was one of them but it was crushed. Yes, I know they said it would be but my lithium was extended release and was not supposed to be crushed(when crushed ER meds release too quickly into the body). I tried to explain this to the CNA but was told that I needed to take it, crushed or go back to crisis. They told me it was safe. So I took the ER Lithium, crushed, everyday twice a day, I trusted them and I had my lithium and I was settling in.
Things were moving along and I was going until day 5 when I got up so sick to my stomach. I suspected I was just nervous and not eating well so I tried to sleep as much as possible. Each day it seemed I felt a bit worse and more tired. I started vomiting along with hanging out on the toliet all day. Still I thought little of it more than just not settling in. All the while I continued taking my meds as directed.
One day towards the end of my second week I was really feeling awful and couldn't do anything and my vision was blurry and I was getting sick more often and I knew I needed help. I called my husband to tell him I was feeling worse and that I needed medical attention. He called my doctor from home and reported my symptoms. My doctor asked what medications I was taking, my husband ran down the list and mentioned that everything was crushed.
From that point forward life went into fast forward, my doctor demanded that my lithium levels be tested immediately and that my medication no longer be crushed. She told my husband that she suspected I was suffering from lithium toxicity and that it was very dangerous, my organs could start shutting down. The crushed lithium had to stopped!
Three days passed before my blood was taken to test my lithium level and in that time the jail did not give me any medication. Finally my blood was drawn but I was never given the results, nor were my husband or doctor. My husband was told by one nurse only that my levels were elevated but nothing else. I was told I could request my records once I was released.
After this disaster, my medications were all switched to liquid so it could not be crushed. But this could only be done because my doctor was willing to continue writing and managing my scripts and my husband was willing to pick up and deliver my liquid medications. The jail was not willing to change anything. When nearing the end of my time, the jail decided I could no longer have my meds brought in and that I would have to go back to crushed. Again my husband and my doctor fought and I was able to have my meds uncrushed while I was there.
Once I got home I did request my medical records. It took three requests and four months and $40 to finally get them. When I finally found my test results from that episode, my lithium level was 3x what it should have been and that was after not having a single dose in over 72 hours, I've been told by my doctors that it was much higher before I stopped the lithium and I should have been tested that first day it was stopped.
That was incredibly scary. It set the stage for my entire stay in jail and the fact that I could not trust that the people in the jail that should have been taking care of me could.